May 30th

Update on Cezar's Condition

Still no discharge date. Maxicare is reassessing the claim for the third time. Sputum culture shows a multi drug resistant bacteria that probably caused the pneumonia. We have a cbc scheduled tomorrow to see if there are any issues with the transfusion. No fever the whole day thank God (sana tuloy tuloy na). Some body pain still present but we hope they all go away soon. Please pray for Cezar's healing. Nothing is impossible with God.

Looking for blood donors

Hi po naghahanap po kami ng blood donor po para po pamalit dun sa natransfuse kay Cezar na 2 bags. 2 donor pa po kailangan namin 2 donor po kase kelangan pamalit per bag na nagamit. Nakapagdonate na po yung bunso kong kapatid pati bunsong kapatid ni Cezar. Nasa UERM po kami nakaadmit ngayon. Salamat po in advance sa mga pwede po magdonate.

May 26th

Admitted to the hospital yesterday since he had a fever on the last day of his antibiotic. Docs say it's because the meds weren't strong enough to get rid of the infection. He also has body pain and difficulty breathing.

He has been admitted to a private room because there are no isolation rooms available in the charity ward. They can admit him in the ward while waiting for an isolation room in charity but I would have to sign a waiver that hospital will not be liable if he catches a different disease during his stay and I just can't take that risk. I am currently talking to maxicare peeps because I was told that Cezar actually has a different benefit limit per illness (and that a pneumonia diagnosis would make them cover the hospital stay).

Please pray for Cezar to get better soon. Thanks everyone and God bless!

May 19th

Update on Cezar's Condition

​Xray result confirmed that Cezar has pneumonia. Doc wants to admit him but we refused since there are no available isolation rooms in the charity ward which may put Cezar at a greater risk. He was talkative at the ER (Doc says he looks 'inadmissible' but they always want to make sure hence the suggestion of confinement) and was answering most of the questions (I usually do all the talking lol). We signed a waiver to be sent home and medicate here. We were given symptoms to watch out for that could indicate a worsening condition (whole day of fever, lethargy, etc) and prescribed strong oral meds to be taken through PEG.

Cezar says he feels fine and also didn't want to be admitted. He says he can't eat sotanghon at the hospital and it also wouldn't be practical to heat food at home and bring it to UERM   His feeding kit is also an issue since sterilizing them is a lot harder when done in the public bathroom plus the fact that only one watcher is allowed per patient. I asked him to let me know if we need to rush back to the ER and he agreed.

He is now sleeping and feeding. Meds will be given after dinner when he has had something heavier to eat. Prayers, prayers, prayers! With God nothing is impossible.  

May 17th

Update on Cezar's Condition

Cezar has been able to eat chicken sopas, rice (mashed with LOTS of soup/sauce, afritada (small shredded pieces), taho, ice cream, and some shredded fish.  His new best friend is ginger tea with honey which soothes his sore throat.

We talked to his med onco this morning and we were given requests for cbc and chest xray (he has some chest pain and doc wants to rule out pneumonia). Not sure how much he weighs now as the scale we have at home isn't very reliable but since he started eating again, he has started to gain some color (his ears are now pinkish) were as he was so pale before. Demeanor has taken a turn for the better and he seems to be a lot more cheerful these days. For the past 3 days he has been able to join us at the table for breakfast (we usually just sit side by side in his slanting chair) 

Formula feeding has been cut down to 2-3x a day unlike 2 weeks ago when we had to formula feed him 5-6x a day. He can now drink a lot of water so hydration doesn't have to be done entirely through his peg tube.

Tumor protruding from the gums is no longer visible, his gums look like regular gums with no teeth. The small part of the tumor seen inside the the right nostril is no longer present. His nose is no longer bleeding. He has a discharge from the right nostril but it has changed color from dark brown to a light yellowish color. Rad onco says this is necrosis and what we are seeing are parts of the tumor disintegrating. Before radiotherapy started, he would have this continuous flow of old blood from the right nostril. Doc says it's because the tumor was still connected to his vascular system and feeding from his blood..Now that the tumor is supposedly dead, it is no longer acting like a parasite and feeding off of his blood. This is the reason the tumor is no longer bleeding (because it doesn't share its blood supply with Cezar anymore). Last cbc showed regular blood count, we are hoping it's going to stay that way.

Surgery will probably be in 6 weeks or so. Please pray for us some more. I know all of you are quietly praying and wishing for his recovery and we just want you all to know that we appreciate your kindness. Thank you and we hope you have a wonderful rest of the week!

Sotanghon :)

Salamat mama Minda at Mabbie aa pagprepare ng pagkain ni Cezar :) labyu!

May 9th

Update on Cezar's Condition

Radiation onco wants repeat scan in August, surgical onco wants it done ASAP. They agreed and moved the scan to first week of June. Surg onco checked Cezar's gums and right nostril and said that it would be better if we have the surgery soon. He's very positive about the shrinkage and does not want to waste time. Everything is on hold until then.

Great news - Cezar has started eating again! 😍  All he eats is chicken sotanghon because it's the only texture he can tolerate for now, but at least he isn't relying solely on formula anymore. His throat is still very much sore but we are able to manage it a little with numbing mouth wash. We can't wait for him to go back to his previous eating habits.

Thank you for all the prayers and please pray for us some more. We are always praying for all of you too. :)  We hope you have a wonderful rest of the week! God bless us all!

Happy 30th birthday, Love!

"I swear, by the moon and the stars in the skies, I'll be there. And I swear, like the shadow that's by your side, I'll be there. For better or worse, 'til death do us part, I love you with every beat of my heart and I swear..."

Happy, happy 30th birthday love! Oo na ako na ang cheesy na nagdededicate ng kanta sa birthday mo. Gusto ko sana ikeep private 'to pero mas gusto ko isigaw sa universe kung gano kita kamahal at kung gaano ako kathankful na pinanganak ka sa mundo 30 years ago.

Alam ko sobrang hirap ng pinagdadaanan mo ngayon. Alam ko wala akong magagawa para maibsan ang pain mo. Pero gusto ko lang malaman mo na andito lang ako lagi para sa'yo. Walang iwanan kahit saan pa tayo makarating.

Ikaw ang pinakamagandang bagay na nangyari sa akin at hanggang ngayon hindi ko parin alam kung deserving ba ako sa'yo. Ang alam ko lang handa akong ubusin ang buong buhay ko para maprove sa'yo na sobrang mahal kita.

Lagi mo sinasabi pag nagkakaproblema tayo na hump lang yun na kailangan lagpasan. Alam ko itong sakit mo hump lang rin. Pinakamalaki so far pero hindi imposibleng malagpasan. Malapit ka na kase maglevel up kaya kailangan dumaan sa boss fight 

Salamat sa napakaraming taon ng saya. Hindi naging posible yun kung hindi ka pinanganak ni mommy haha! Dagdagan pa natin ang masasayang memories natin. Hindi muna ako magluluto kase baka maupset ka lang dahil 'di ka pa makakain pero promise kapag kaya mo na kumain lahat ng gusto mo lulutuin ko.

I love you di. Happy birthday uli! Wala akong gift na mabibigay kundi oras at pagmamahal. Alam ko naman sapat na 'yon sa'yo. Basta gusto ko malaman mo whatever happens, may isang taong magmamahal sa'yo at hinding hindi ka iiwan.

mi

May 3rd

Update on Cezar's Condition

Met with Cezar's Rad Onco today. Repeat scan will be in August with periodical xrays in June and July. This is to allow the inflammation in the area surrounding the tumor to go down. Right now the only indicator we have that the tumor has gotten smaller are the ff

• Tumor protruding his gums no longer visible
• Pain meds cut down significantly with no issues
• Cezar can now open his right eye without getting dizzy (he still keeps it closed because of the double vision)
• Right eye no longer bulging
• He can smell on and off now
• Part of the tumor visible inside his right nostril can no longer be seen
• Bridge of the nose no longer tilts to the left

Right now our goal is for him to gain weight in prep for his surgery. Doc says the sores will heal in a week or two so it will no longer be painful to swallow, talk, or eat. In the next few weeks as the swelling goes down he will be able to breathe normally again. It's a long wait but we trust in God's plan and know that His timing is always right. Please pray for Cezar's healing. As always, thank you all for the support and God bless you all!

39 painful radiotherapy sessions done!

James 1:12

"Blessed is the one who perseveres under trial because, having stood the test, that person will receive the crown of life that the Lord has promised to those who love him."

39 painful radiotherapy sessions done! Tested by heartbreaking trials but we are here, dear God, and our faith has grown stronger than ever. Guide us as we approach Cezar's surgery. Bigyan nyo po ng lakas ang asawa ko na kayanin nya ang mga susunod pang pagsubok sa buhay nya. Pagalingin nyo po sya. Alam ko pong hindi nyo sya pababayaan.